Tuesday, January 29, 2013

Day 1 Hospital Update

We have had a long day in Little Rock. We have accomplished some, but not all that we expected to get done today. We met with the cardiologist late this morning, had a new echo performed, met with the cardiologist again, etc. We are now waiting to meet with the surgeon tomorrow at some point to continue to determine if surgery is actually a viable option for Parke. We thought we were going to meet with him tonight, but as of 7:00 this evening, he was STILL in surgery and had been for 11 hours. I cannot even imagine having a job like that...these guys are "ninjas" according to one of the nurses. :) They must never sleep. 
Here are a few pictures from our day...

Parke waiting for his appointment this morning. You can probably see the blue color around his lips...this has started happening occasionally, but he is still not requiring additional oxygen. 

Naked man waiting on his echo. He was giving me "the look" because he wanted his clothes back on!

They went ahead and admitted Parke to ACH today just so that we would be in the system if we decide to move forward tomorrow with surgery. 
He looks very hooked up, but really it isn't anything compared to other babies we saw! 
He is only having his blood pressure, heart rate, etc. monitored. He is not having any additional "support" at this point. 

The excitement of the day came with a tornado scheduled to hit the Little Rock area. Sirens were going off, and they required almost all of the patients to leave their rooms and gather in the hallway. We stayed out there for almost an hour! Parke was easy to transport because they just unplugged all of his stuff. The kiddos that required life support looked a lot trickier to move. The nurses were so sweet taking care of those babies!

So, tomorrow we will meet with the surgeon and know a lot more then. I will keep you updated as I can!

A friend reminded me of this verse the other day, and I love how it reminds me once again that these tough decisions are not all on us. God has already planned Parke's first and last day. I am thankful that he was with us for his first, and I pray that his last is far far away. We will trust God's timing and direction as we move forward tomorrow, and we know that none of these things that are happening are a coincidence, and nothing is a surprise to God. 

Psalm 139:13-16 "For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of earth, your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be.

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